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      Marco’s story

      Marco’s story

      Build your legacy

      Meet Marco

      Marco is a husband and father who loves sports, storytelling, and spending time outdoors with his wife and daughters. When a twitch in his arm persisted, he saw a series of doctors before learning that he has amyotrophic lateral sclerosis (ALS). The illness results in gradual paralysis of the muscles, including those responsible for speech. Marco uses a communication device he controls with his eyes to speak with a synthetic voice and work on his writing. He has published three children’s books as a gift to his daughters.

      "I want to show other people with ALS that it is worthwhile to continue. Life always offers opportunities.”

      — Marco Schulz

      Marco communicating with his daughters using his I-Series device

      Life with assistive technology

      Three years after he was diagnosed with ALS, Marco began to lose his voice. After a frustrating experience with a speech device from a medical supply store, he searched the internet for a better option. When Marco discovered the I-Series, he unlocked a richer way of life. Using the TD Browse app, Marco explores his curiosities and stays informed on the internet via eye tracking. With the Communicator 5 app, he can talk to his family and friends, write stories, and maintain his presence on social media, where he has reached influencer status through his candid posts about the realities of ALS. Living with the illness comes with pain and discomfort. Communicator 5 helps Marco create a soothing environment with music and television as well as lighting and temperature controls. In his favorite moments, he loses himself in a sports game or movie with his family beside him.

      Marco communicating with his daughters using his I-Series device

      Life with assistive technology

      Three years after he was diagnosed with ALS, Marco began to lose his voice. After a frustrating experience with a speech device from a medical supply store, he searched the internet for a better option. When Marco discovered the I-Series, he unlocked a richer way of life. Using the TD Browse app, Marco explores his curiosities and stays informed on the internet via eye tracking. With the Communicator 5 app, he can talk to his family and friends, write stories, and maintain his presence on social media, where he has reached influencer status through his candid posts about the realities of ALS. Living with the illness comes with pain and discomfort. Communicator 5 helps Marco create a soothing environment with music and television as well as lighting and temperature controls. In his favorite moments, he loses himself in a sports game or movie with his family beside him.

      The power of teams

      Marco’s wife Nina and their two daughters give him the emotional strength he needs to persist in his fight with ALS. His palliative nurse Özgür assists him with physical needs and helps to keep him smiling. Marco has also cultivated a vast network of connections on social media, including a few new friends who also have ALS. His efforts to raise awareness about the illness eventually caught the attention of ZDF, a major German news outlet. With the aid of his I-Series, Marco told his story to a large audience, which helped him sell more copies of his books than he ever imagined possible. He hopes the collection will inspire people to learn about ALS, but most importantly, hopes his daughters will cherish the stories forever.